Adrenal Cortical Carcinoma affects one in a million people per year. Currently there is no cure
You will find a lot of information here that I hope will help you, inspire you, comfort you and help to educate you, your family and friends as you begin to understand Adrenal Cancer and the dire challenges facing the Patients, Medical Profession and Cancer Research Scientists involved in ACC and the desperate need for funding Adrenal Cancer Research.
But ultimately, if you really want to make a difference, I can make it simple, donate now!
See Donations page for more information
Unfortunately, this is the ‘only’ way we are going to Cure Cancer. We keep asking our government to cure cancer, but without raising our taxes that isn’t going to happen.
If 500 people visited this website, and each donated $100.00 to Adrenal Cancer Research, that would raise $50,000.00 which would pay for One Full Time Researcher for one year at The University of Michigan’s Adrenal Cancer Program, just to name one example!
Imagine if 1000 people donated $1000.00 each! Would we be there yet?
This is what is going to cure cancer!
The fact is that funding for research for ultra rare diseases comes most often from the patients themselves, their families and their friends and if they are very lucky, the communities themselves of those affected by the ultra rare diseases.
Our Mission Statement and ultimate goal: To raise awareness of the Ultra Rare Cancer: Adrenal Cortical Carcinoma, considered an Orphan Disease and to promote funding for it’s research.
Due to the rarity of Adrenal Cancer many doctors may not be familiar or experienced with ACC and the unique requirements involved with treatment and it’s surgery.
OverComeACC is an informational resource website designed to help you in your search to acquire knowledge and locate Doctors and Hospitals with Adrenal Cortical Cancer experience, as well as locate support groups for sharing of information that may be helpful to you in your search for treatment of this Ultra Rare Cancer: Adrenal Cortical Carcinoma.
Additionally, there is an ACC Community out there that has been traveling this road before you and accumulatively they have a wealth of knowledge to share and they do so willingly.
They can answer questions and share success stories as well as the hardships, enable-ling you to benefit from those that have come before you. We feel that we are all in this together and that makes this a much easier road to travel!
It is important that you have an experienced ACC expert on your team, thus it is imperative that you seek out Rare Cancer Specialists and hospitals experienced in this Ultra Rare Disease for both the experienced care that you will receive as well as the additional resources they will have available to you for you to know that you are not alone in this journey.
See our facilities page for recommendations.
ACC is an Ultra Rare Cancer that has us, the patients learning and acquiring knowledge right along with the Doctors. We are learning together and from one another, thus fellow ACC Patients can provide a newly diagnosed Adrenal Cortical Cancer patient with a wealth of knowledge and information to share to allow us all to become the very best informed patient that we can be.
Be your own Best Advocate!
Knowledge is power!
ACC is just one of many underfunded Ultra Rare Cancers that could use your help to find a cure.
You will find websites here that will allow you to donate online to help support Adrenal Cancer Research thereby helping to change the world and make a difference!
Together we can be the change we want to see in the world!
Contact us @ OverComeACC@gmail.com
Although Congress has substantially increased research funding for NIH National Institute of Health over the years, funding for rare diseases has only increased slightly. Rare Diseases defined according to US criteria as one that affects fewer than 200,000 people as defined by the rare Disease Act of 2002
There are more than 7,000 such rare disorders. These can also be known as Orphan Diseases.
An Orphan Disease can be defined as a condition that affects fewer than 200,000 people nationwide. Some Orphan Diseases have patient populations of fewer than one thousand, making them Ultra Rare Orphan Diseases. Collectively they affect as many as 25 million Americans according to the NIH.
Rare Diseases FAQ
Hope for People With Rare Diseases
That makes finding treatments for them a serious public health concern.. There are over 200 different types of cancers. Government funding is dedicated to the 10 to 20 most common cancers.
Over two thirds of all cancers are considered rare affecting fewer than 200,000 people per year in the U.S. About half of those are considered ultra rare, affecting fewer than 40,000 people per year in the. The rarest of these are also known as ultra-orphan diseases. The term ultra-orphan disease is used to designate diseases that affect only small numbers of individuals, so-called health orphans.
Adrenal Cortical Carcinoma is cancer of the adrenal gland and affects only about one in a million so as to be termed an Ultra Rare Cancer or Ultra-Orphan Disease
CC is just one of many underfunded, Ultra Rare Cancers that could use your help to find a cure.
Be an Advocate for Ultra Rare Cancer Research and Reform.
Be the change you want to see in the world